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Living with Dementia

In listening to the experiences of people living with dementia and their family members, the feelings of isolation, adjustment and community are common. We must consider these experiences in any area of dementia care.

Handouts

Resources

Books

Bryden, Christine, Dancing with Dementia, My Story of Living Positively with Dementia, New Jersey, Jessica Kingsley Publishers, 2005

Boss P, Loving Someone Who Has Dementia: How to Find Hope while Coping with Stress and Grief, San Francisco, CA: Jossey-Bass; 2011

Davis, R, My Journey Into Alzheimer's Disease: Helpful Insights for Family and Friends. Wheaton, Illinois: Tyndale House; 1989.

Genova, L, Still Alice. New York, New York: Simon & Schuster; 2014.

Henderson, C, Partial View: An Alzheimer's Journal. Dallas, Texas: Southern University Methodist Press; 1998.

Hoblitzelle, Oliva Ames, Ten Thousand Joys & Ten Thousand Sorrows: A Couple's Journey Through Alzheimer's, New York, New York: Penguin Press; 2010

O'Brien, G,  On Pluto: Inside the Mind of Alzheimer's. Brewster, MA: Codfish Press; 2018.

Pearce, Nancy, Inside Alzheimer's: How to Hear and Honor Connections with a Person who has Dementia, Taylors, South Carolina, Forrason Press, 2010

Petersen, B, Jan's Story: Love Lost to the Long Goodbye of Alzheimer's. Lake Forest, California: Behler Publications;  2010.

Raushi, T, A View From Within: Living with Early Onset Alzheimer's. Chicago, IL: Alzheimer's Disease and Related Disorders Association; 2001.

Rose, L, Show Me the Way to Go Home. Forest Knolls, CA: Elder Books; 1996.

Schneider, C,  Don't Bury Me Now: It Ain't Over Yet. Author House; 2006.

Synder, L, Living Your Best with Early-Stage Alzheimer's Disease, North Branch, MN: Sunrise River Press; 2010

Snyder, L, Speaking our Minds: Personal Reflections from Individuals with Alzheimer's, Baltimore, MA: Health Professions Press; 2009

Taylor, Richard, Alzheimer's from the Inside Out, Baltimore, Health Professions Press, 2006

Books for Children

Fox, M,. Wilfrid Gordon McDonald Partridge. Brooklyn, New York: Kane/Miller Book Publishers; 1985.

McCormick, Susan and Timur Deberdeev, Granny Can't Remember Me: A Children's Book About Alzheimer's,  Carroll Press, 2017

Scacco, Linda, Always My Grandpa: A Story for Children about Alzheimer's Disease, Magination Press, 2005

Schnurbush, Barbara, Striped Shirts and Flowered Plants: A Story About Alzheimer's Disease for Young Children, Magination Press, 2007

Shriver, Maria, What's Happening to Grandpa?, Little, Brown Books for Young Readers, 2004

Tauber Prior, Beatrice and Mary Ann Drummond, Grandma and Me: A Kid's Guide for Alzheimer's and Dementia, Morgan James Kids, 2017

Videos

Alzheimer's from the Inside Out - Dr. Richard Taylor

Away From Her

Still Alice

Too Soon to Forget: The Journey of Younger Onset Alzheimer’s Disease 

Websites

Alzheimer's Association

Alzheimer's Disease and Related Disorders 
Material from the National Institute on Aging

The Toolkit Project
A resource developed by the Rush Alzheimer's Disease Center for Dementia Support Group Leaders

I thought the course was amazing and feel honored to have been part of it. Thanks for all your hard work!